“People need to listen to carers. You might hear me, but that doesn’t mean you’re listening.”
Ann, 76, helps to care for her grandson, who was diagnosed with schizoaffective disorder aged 18. He was an inpatient at Highbury Hospital following four admissions within six years.
“Being a carer has taken over my life quite a lot. I’ve not had the relaxing retirement I planned!
When he isn’t in hospital, Ann’s grandson has a flat of his own. “His mum works full-time as a special needs teaching assistant, so I support him at home if he needs me.
“It can be tiring – there are hospital appointments, reviews. A lot of life is governed by visiting.
“But we have a very good relationship. We enjoy walking together. We go to the cinema and he visits church with me when he can. We volunteer at the Trust together as well; the Involvement Centre has been a tremendous support to us both.
“I want proper care in the community for service users and their carers. I’d also like to see an increase in funding for mental health services, rather than a reduction.
“Carers have to have a voice – and be listened to.”
Anne will be part of our first ever Carers, Family and Friends Conference on 7 July –>http://tinyurl.com/ps5b86e Watch LIVE on #Periscope using @InvolveT1 #cffjuly15#5daystogo
We are looking for Volunteers:
- Who can help us maintain a garden at the Woodlands unit, Highbury
- Ward Visitors on our male inpatient unit at Highbury
- Volunteers on the ECT suite at QMC
- Tea Bar Volunteers at Millbrook
- Feedback Volunteers – Trust wide
Please call us on 0800 052 1514 for more information or apply at https://do-it.org/organisations/nottinghamshire-healthcare-nhs-trust
This month in the Involvement Centre is an unusual one as the centre is getting a much needed lick of paint! Choosing the colour scheme was one of the more chaotic Tuesday Meetings, but come next month we should have a beautifully decorated centre that’s ready to make a difference!
The Ideal Ward Round project is still running along at pace. This project hopes to find what an ideal ward round or review looks like for patients and staff on the wards. We started with developing four questionnaires and volunteers have been busy getting out and about across the Trust asking and supporting people to fill in the questionnaires. The two centres Rosewood and Duncan Macmillan House have now managed to get 50 questionnaires completed, which is a significant amount of data for this first stage.
One of the highlights last week for the Ideal Ward Round was being part of the Easter celebrations as part of the Highbury Live! Event. We managed to raise awareness of the project and staff were particularly keen to be involved. With the Rosewood Centre at Millbrook and Bassetlaw we are really gaining momentum.
What with other work over the next month working with the Crisis House, new Trust website and training for volunteers to be involved in serious incident reviews, when the paint dries we’re going to be busy!